Authors

  1. McBride, Katharine BHSc, GCEc,MHEc&P
  2. Kelly, Janet PhD, MN, RN
  3. Kite, Elaine BPHC, BA
  4. Keech, Wendy BA, GradDip, MPH, FGLF
  5. Rischbieth, Amanda PhD, MNSc GradDip (Intens Care) FAICD FGLF
  6. Brown, Alex BMed, MPH, PhD

Abstract

Review question/objective: The objective of the systematic literature review is to identify the experiences of Aboriginal and Torres Strait Islander people admitted for a cardiac event in Australian public hospitals, and ascertain the factors which shape these experiences. The specific review question to be addressed is: What are the factors which shape the experiences of Aboriginal and Torres Islander people who have been admitted for a cardiac event in Australia?

 

Background: Cardiovascular disease (CVD) is the leading cause of death for Aboriginal and Torres Strait Islander people; accounting for a quarter of all deaths.1 Aboriginal and Torres Strait Islander people are more likely to have multiple risk factors for and experience early onset of CVD, with significant differentials in outcomes, which are particularly notable in younger age groups.2,3 Aboriginal and Torres Strait Islander people also experience hospitalization for heart attack at significantly higher rates (males: 2.2 times, females: 3.1 times). However, national data demonstrates that Aboriginal and Torres Strait Islander people are significantly less likely to receive angiography; coronary angioplasty; and coronary bypass surgery when compared to other Australians.4 Furthermore, their in-hospital mortality is 2.2 times that of non-Indigenous people.5

 

Once admitted to hospital, a range of clinical, health system and individual patient factors may contribute to poorer experiences and worse outcomes for Aboriginal and Torres Strait Islander people who have been admitted for a cardiac event. The health of Aboriginal and Torres Strait Islander people, such as the greater presence of diabetes, comorbidities and more diffuse coronary disease, may influence both the level of treatment received and the experience of hospitalization.6,7 Health systems factors may also influence the patient's experience. In particular, racism and disrespectful treatment, poor communication, a sense of being invisible, and a disengagement of family structure have been identified as barriers to appropriate care and detrimental to long-term health outcomes.8 Other factors, such as lack of access to follow-up care, assumptions around "compliance" and adherence, and language barriers are also believed to influence the care received by Aboriginal and Torres Strait Islander people, and their experience of hospitalization.6

 

A search of the literature on existing systematic reviews was conducted. Whilst there are systematic reviews which focus on the experiences of Indigenous peoples in seeking hospital care, none have specifically considered what factors shape these experiences for Aboriginal and Torres Strait Islander peoples with CVD in Australia.

 

This systematic review will therefore focus on: the experiences of Aboriginal and Torres Strait Islander people receiving hospital care for a cardiac event within the Australian public hospital system, and; the individual, clinical and system factors which shape these experiences.

 

The systematic review will center on the experience of Aboriginal and Torres Strait Islander people from their perspective and that of their families and communities. It is also recognized that the perspective of health care providers and policy makers may provide a valuable, and potentially alternative perspective, of the experiences of patients and the factors which shape these experiences. These will also be explored.

 

This systematic review will bring together recent qualitative and text/opinion literature to provide an understanding of the factors which impact the experiences of Aboriginal and Torres Strait Islander people, potentially supporting the development of strategies to improve the Aboriginal and Torres Strait Islander experience of cardiac hospital care.

 

Outcomes from this systematic review will provide health care providers and system administrators with a foundation to overcome barriers to positive experiences and improve access and quality of care for Aboriginal and Torres Strait Islander people accessing care for cardiac events in hospitals.

 

Article Content

Inclusion criteria

Types of participants

The review will consider studies that have included Aboriginal and Torres Strait Islander people of any age, who have been admitted to and have received care in, an Australian public hospital for a cardiac condition. Participants of interest are Aboriginal and Torres Strait Islander patients, their families and members of community, or health care providers and policy makers providing care to Aboriginal and Torres Strait Islander people in the hospital setting.

 

Phenomena of interest

The phenomena of interest are the experiences of Aboriginal and Torres Strait Islander peoples treated for a cardiac event in an Australian hospital, as well as an understanding of which factors impact on those experiences, expressed as attitudes, beliefs, expectations, understandings and knowledge.

 

Context

The context of the review is the provision of care to patients being treated for a cardiac condition within Australian public hospitals. The review will consider patients receiving "cardiac care" or being treated in a cardiac ward (including but not limited to cardiac surgery, cardiology and cardiothoracic wards).

 

Types of studies

The qualitative component of the review will consider studies that focus on phenomenological, action research and ethnography qualitative studies; however other qualitative methodologies will be reviewed. The textual component of the review will consider expert opinion, discussion papers, position papers and other text (e.g. reports). Mixed-method studies that support quantitative data collection, alongside qualitative inquiry or textual elements, will also be considered for their qualitative and/or textual component.

 

Search strategy

The search strategy aims to find both published and unpublished studies. The three-step search strategy utilized in this review is as follows:

 

An initial limited search of MEDLINE, CINAHL and PubMed will be undertaken followed by analysis of the text words contained in the title and abstract, and of the index terms used to describe the article. A second search using all identified keywords and index terms will then be undertaken across all included databases. Thirdly, the reference list of all identified reports and articles will be searched for additional studies. Studies published in English from January 2000 to the end of 2014 will be considered for inclusion in this review. The potential differences in in-hospital cardiac care between Aboriginal and Torres Strait Islander people and non-Indigenous Australians was first recognized in the literature in the early twenty-first century.9-11Therefore it was decided that to ensure all relevant literature was included, the year search would include literature dating from January 2000 to the present.

 

The databases to be searched include:

 

CINAHL

 

ATSIHealth via Informit Online

 

OVID Medline

 

Web of Science

 

PsychInfo

 

Australian Indigenous Health Bulletin

 

Embase

 

The search for unpublished studies will include:

 

Australian Institute of Aboriginal and Torres Strait Islander Studies

 

Australian Indigenous Health InfoNet

 

Initial keywords to be used will be:

 

Indigenous; Aboriginal; Torres Strait Islander; cardiovascular; acute coronary syndrome; cardiac; cardiac event; patient, provider experience; patient journey; hospital; in-hospital.

 

Assessment of methodological quality

Papers selected for retrieval will be assessed by two independent reviewers for methodological validity prior to inclusion in the review using standardized critical appraisal instruments from the respective Joanna Briggs Institute Assessment and Review Instrument (JBI-QARI for qualitative papers) (JBI-NOTARI for textual papers) (Appendix I).

 

Any disagreements that arise between the reviewers will be resolved through discussion, or with a third reviewer.

 

Data collection

Qualitative data will be extracted from papers included in the review using the standardized data extraction tool from JBI-QARI (Appendix II). Textual data will be extracted from papers included in the review using the standardized data extraction tool from JBI-NOTARI (Appendix II).

 

The data extracted will include specific details about the population, study method and outcomes of significance to the review question and specific objectives. The primary and secondary reviewers will extract data from individual studies separately.

 

Data synthesis

Qualitative research findings will, where possible be pooled using JBI-QARI. Textual papers will, where possible, be pooled using JBI-NOTARI. This will involve the aggregation or synthesis of findings to generate a set of statements that represent the aggregation, through assembling the findings rated according to their quality, and categorizing these findings on the basis of similarity in meaning. These categories are then subjected to a meta-synthesis in order to produce a single comprehensive set of synthesized findings that can be used as a basis for improvements in practice. Where textual pooling is not possible the findings will be presented in narrative form.

 

Conflicts of interest

None to declare.

 

Acknowledgements

This project is a partnership between the Heart Foundation, the South Australian Health and Medical Research Institute and the Statewide Cardiology Clinical Network Data and Information Workgroup.

 

References

 

1. Australian Health Ministers' Advisory Council. Aboriginal and Torres Strait Islander Health Performance Framework 2012 Report. Canberra (Australia): Australian Health Ministers' Advisory Council; c2012. http://www.health.gov.au/internet/main/Publishing.nsf/Content/F766FC3D8A697685CA[Context Link]

 

2. Penm E. Cardiovascular disease and its associated risk factors in Aboriginal and Torres Strait Islander peoples 2004-05. Canberra (Australia): Australian Institute of Health and Welfare; 2008 Jun. (Cardiovascular disease series; no. 29) AIHW cat. no. CVD 41. https://www.aihw.gov.au/WorkArea/DownloadAsset.aspx?id=6442455071[Context Link]

 

3. Australian Health Ministers' Advisory Council. Aboriginal and Torres Strait Islander Health Performance Framework Report 2010. Canberra (Australia): Australian Health Ministers' Advisory Council; c2011. AIHW cat. no. CVD 33. http://www.health.gov.au/internet/publications/publishing.nsf/Content/health-oat[Context Link]

 

4. Mathur S, Moon L, Leigh S. Aboriginal and Torres Strait Islander people with coronary heart disease: further perspectives on health status and treatment. Canberra (Australia): Australian Institute of Health and Welfare; 2006.Australian Institute of Health and Welfare, 2006 Sep. (Cardiovascular diseases series no. 25) AIHW Catalogue no. CVD 33. http://www.aihw.gov.au/WorkArea/DownloadAsset.aspx?id=6442454970[Context Link]

 

5. Thomson N, MacRae A, Brankovich J, Burns J, Catto M, Gray C, et al. Overview of Australian Indigenous health status, 2011. Perth (Australia): Australian Indigenous HealthInfoNet; 2012 Jan. http://www.healthinfonet.ecu.edu.au/uploads/docs/overview_of_indigenous_health_2[Context Link]

 

6. Bradshaw PJ, Alfonso HS, Finn J, Owen J, Thompson PL. The use of coronary revascularisation procedures in urban Australian Aboriginals and a matched general population: coronary procedures in Aboriginals. Heart Lung Circ. 2010 Apr;19(4):247-50. [Context Link]

 

7. Roe YL, Zeitz CJ, Mittinty MN, McDermott RA, Chew DP. Impact of age, gender and indigenous status on access to diagnostic coronary angiography for patients presenting with non-ST segment elevation acute coronary syndromes in Australia. Intern Med J. 2013 Mar;43(3):317-22. [Context Link]

 

8. Brown A. Acute coronary syndromes in indigenous Australians: opportunities for improving outcomes across the continuum of care. Heart Lung Circ. 2010 May-Jun; 19(5-6):325-36. [Context Link]

 

9. Cunningham J. Diagnostic and therapeutic procedures among Australian hospital patients identified as indigenous. The Medical journal of Australia. 2002 Jan 21;176(2):58-62 [Context Link]

 

10. Mathur S, Moon L, Leigh S. Aboriginal and Torres Strait Islander people with coronary heart disease: further perspectives on health status and treatment, summary report. Canberra: Canberra: Australian Institute of Health and Welfare, 2006. Report No.: AIHW Catalogue no. CVD 34. [Context Link]

 

11. Coory MD, Walsh WF. Rates of percutaneous coronary interventions and bypass surgery after acute myocardial infarction in Indigenous patients. The Medical journal of Australia. 2005 May 16;182(10):507-12. [Context Link]

Appendix I: Appraisal instruments

 

QARI appraisal instrument

 

NOTARI appraisal instrument[Context Link]

Appendix II: Data extraction instruments

 

QARI data extraction instrument

 

NOTARI data extraction instrument[Context Link]

 

Keywords: Indigenous; Aboriginal; Torres Strait Islander; cardiovascular; acute coronary syndrome; cardiac; cardiac event; patient; provider experience; patient journey; hospital; in-hospital